WHAT WE DO
The emotional and practical impact on the whole family is enormous and all family members, including siblings and grandparents, need regular support to help them cope at the time of diagnosis, through the young person's illness, at the time of bereavement and beyond.
We acknowledge the families have always been directly involved in the treatment and care of their child and their wishes are always respected.
Leo House will assist in obtaining help and advice which will support the children, young people and their families according to their individual physical, emotional, social and spiritual needs. We do this in a number of ways including:
- looking after the sick child or young person so the rest of the family can spend time together;
- providing information about obtaining equipment and other aids;
- assessing and monitoring the on-going needs of the very sick child or young person;
- working closely with the statutory and voluntary agencies, the child's or young person's medical team and others, to ensure the family receives the services best suited to their needs;
- befriending and listening to the concerns of the whole family;
- bereavement support for as long as it is needed;
- enabling parents lo look alter their child or young person by teaching and training them to carry out medical procedures such as tube feeding, tracheotomy tubes and administering medication.